About Myotonic Dystrophy

Charles “Charlie” Goodman, a San Francisco-based businessman, has over four decades of experience in the building industry, having served as the general partner of Goodman Lumber Company. Previously the mayor of Ross, California, he is involved with a number of charitable organizations in and around San Francisco. Charles Goodman’s Shifting Gears USA has raised more than $400,000 for organizations dedicated to combating Myotonic Dystrophy.

Myotonic Dystrophy is divided into two types, depending on the disease’s point of origin and the age of the individual at the time of onset of the disorder. Both types appear as gradually increasing muscle weakness and can manifest in young adulthood or adulthood. Affected people have at least one parent with the disorder, regardless of whether the person has Myotonic Dystrophy Type 1 (MMD1) or Type 2 (MMD2).

MMD1often begins in the affected person’s teenage years and impacts about 5 to 20 per 100,000 people throughout the world. MMD1 is marked by progressive muscle weakness from the outer digits inward, cataracts, delayed muscle relaxation, and a possibly shortened lifespan, depending on the severity of the disorder.

A rarer and less severe form of the disorder, MMD2 begins in central muscles, such as those of the hips and other weight-bearing areas, before slowly progressing outward. Myotonic Dystrophy often appears earlier and more severely through successive generations, a process known as anticipation.


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